Sjogrens Syndrome

Hey, one thing I think will be helpful that my friends know and my family know, members know, is that unfortunately Sjogren's is not something that can go away. It may be dormant at times, but it's going to be a roller coaster where sometimes I'm okay, and sometimes I'm in the hospital because it has affected my nervous system, and sometimes it can even mimic a stroke, sometimes I'll get rashes, I get lots of pain, sometimes it's even hard to think, it's like foggy brained, and sometimes it's hard to talk because it affects my salvatory glands. It's hard to constantly live your life when you're in a lot of pain, and I think having people understand that, but not feel pity for me, but just being aware and more sensitive to it has been really helpful, and it's really hard to ask for help, especially when it happens so often or so frequently, for me at least, when I get bad flares. So just being there and being aware of that's very helpful.