Sjogrens Syndrome

One of the hardest aspects for me with Sjogren's is I don't know what I'm going to get. Is it going to be calm that day? Is it like a dragon sleeping and then you know it's there, so you feel like you can never fully be settled because it can just like wake up and start blowing fire. So that's been hard. It has given me trigeminal neuralgia on my right side and that's very, very painful. Also migraines that have mimicked stroke. It's hard to know what to get. It has affected me with neuropathy. I'll get a really painful rash if I'm in the sun too much. Rays on my arms especially. Everything's super dry as you know. It makes it hard to talk sometimes because my saliva glands have been affected. The brain fog and fatigue are gnarly and it's just exhausting and I have three kids and it's just it's really frustrating to have to combat that and not know what I'm going to get. So even committing to things is hard because I don't know how my body's going to do.