Video 1 Transcript
I think some of the hardest aspects for me is that it really takes you down for either a few days or a few hours and you really just have to step away from what you're doing and take a break and sit in a dark room.
I think some of the hardest aspects for me is that it really takes you down for either a few days or a few hours and you really just have to step away from what you're doing and take a break and sit in a dark room.
The hardest aspect of having migraine with aura, apart from the fact that it's very invalidating and it can endure also two days in my case, is that before of it I suffer from the aura that basically includes a sort of partial blindness. That's the part that is in my opinion worse, because being a very independent person I move around a lot, I drive a lot here and there around different cities. So once it happened that I was in another city alone with my car, so I had to call my husband and ask for him to pick me up, because I was not capable to come back home. But I never stopped living my life and that's the thing I think everyone should do.
What I found was the hardest aspect for me to grasp was the fact that it hits me whenever, wherever I am. Sometimes it's really impacted the fact that like I needed to drive somewhere or I was somewhere that was really loud or just like very inconvenient timing. So that's been the hardest part for me to understand and the other hardest part is having family and others understand like canceling plans and things or just all of a sudden you go from happy to I need to go way down I hurt. That's been really hard for family to understand and some of my friends have a hard time understanding that as well.
