Marfan Syndrome

I know there's a guy that's in a band named Of Mice and Men, and he's the lead singer, and he's affected with it. And so I follow him on Facebook to kind of see what he goes through.

So another thing that comes up with Marfan's syndrome is you're going to have regular things that come up in life besides what Marfan's is and what it does to you. My son had an experience where he had to go to the emergency room and when we got to the hospital because I didn't feel like what was going on with him had anything to do with the Marfan's, I didn't mention it and then after we had talked to some of the nurses they found out that he had Marfan's and I think that made them sort of question that there could be something else going on with what he was being seen for and treated for. And it can make it a bigger deal than it should be. So just be very transparent. It's the second you go into any health care to get treatment. Just make sure that they know straight off that the person that they're done with has Marfan's.