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Ankylosing Spondylitis

Not professional medical advice

Watch 5 videos with patients, caretakers and professionals about Ankylosing Spondylitis— listen to personal experiences, and learn helpful tips and tricks to manage your health condition. Share your health experiences to help others!

Ankylosing Spondylitis Interviewee 1
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Symptoms

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Hardest aspects

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Helpful tips

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Personal experiences

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Treatments

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Causes

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Encouragement

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How to support

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Interesting facts

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Other

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Resources

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Symptoms

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Video 1 - Transcription

I know everyone's symptoms can vary with ankylosing spondylitis. Mine, I had uveitis and even went to the optic nerve, so I had optic neuritis. I've had uveitis like 11 times and it's very painful. I would see floaters and the light sensitivity and just inflammation, it just really hurt. I also have like multiple herniated discs, a lot of hip pain, a lot of lower back pain, especially in the lumbar and in the cervical, tons of joint pains in my hands. Sometimes you can see inflammation, sometimes you can't, even in my feet to my knees. One telltale sign is your tailbone hurting, which sounds funny, but I thought it was like because of childbirth, but it was ankylosing spondylitis. So there's a lot of different things. My brother's toes were the sausage toes, they grew like double and my sister's knee was double in size. I haven't seen any big physical swelling, but I can feel it and the doctors can see it, so there's different variations.