Related Topics

Related Topics

Amyotrophic Lateral Sclerosis

Not professional medical advice

Watch 9 videos with patients, caretakers and professionals about Amyotrophic Lateral Sclerosis— listen to personal experiences, and learn helpful tips and tricks to manage your health condition. Share your health experiences to help others!

Amyotrophic Lateral Sclerosis Interviewee 1
Amyotrophic Lateral Sclerosis Interviewee 2
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Personal experiences

1 video

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How to support

1 video

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Life lessons I've learned

1 video

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Causes

1 video

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Helpful tips

1 video

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Treatments

1 video

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Helpful perspectives

1 video

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Experiences with communication devices

1 video

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Other

1 video

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Experiences with diets

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Lifestyle tips

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What I wish I knew

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Encouragement

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Common misconceptions

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Experiences with breathing support devices

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Resources

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Symptoms

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Interesting facts

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Communication tips

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Most useful products

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Hardest aspects

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Experiences with feeding devices

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Messages of hope

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Diagnosis stories

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Interesting research

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Experiences with mobility devices

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Mental health tips

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Personal experiences

Watch Videos
Video 1 - Transcription

My husband and I are full-time caretaker of my sister-in-law. She's in the very late stages of ALS. No one ever just gave me the information straight forward and I just had to figure things out for myself and so that was difficult because I had a lot of hard questions and I was directed to people to talk to about those hard questions and it just didn't happen. When caring for someone with ALS you get into a routine like going to the bathroom and in that routine you can get comfortable for a couple weeks to a month before another decline happens to where maybe they can't walk as far away as the bathroom. You kind of get used to planning and thinking what's the next stage a bedside commode? Should I order one? Should I get diapers? Should I get a pad for the bed? Go ahead and order it because it's better to have it there and need it than not have it and need it.