Having this makes it hard because there's not an actual direct reasoning and easy fix for everything that you're suffering from. A lot of the times you just get told to get on with it because there's not a lot people can do for it. It's based off of psychological trauma in some cases and so it needs to be treated as such but not everybody has psychological health care available to them so you just get left.
I was just diagnosed with fibromyalgia about six months ago, but I can look back to kindergarten and see that I had symptoms back then, and that was 30 some odd years ago, and you look at the pain and the amount of pain I was in, and you look at the psych problems, and I was only diagnosed with psych problems when I was 18, but family members and stuff didn't believe in that then, and you add that in then with abuse from other people and everything, and physical abuse, mental abuse, psychological abuse, emotional abuse, and then you add in physical injuries, and then all other kinds of diagnoses and everything. People start to lose compassion for you, and it's hard for people to care when you really don't feel good.
The other day, it was very hard for me to explain that searching for the remote that just got lost in my bed took everything out of me and I couldn't do anything for the rest of the day. That it just exhausted me. He didn't understand that flipping through five pillows and a blanket and moving my dog around was something that completely exhausted me and I was down for the count. And that's something that hurts not just physically but mentally and exhausts you in so many ways that just a stupid remote can cause you so much pain and effort.