Misdiagnosis stories - Fibromyalgia Video Transcripts
Video 1 Transcript
Seven years ago now, it took me two years to get diagnosed with fibromyalgia, so every time I went to the doctors, it was, there's nothing wrong, there's nothing wrong. Thinking I was going crazy, but they put me through every test, every blood test, scan, you could think of, and when they found nothing, the fibromyalgia. Went to a rheumatologist, I had steroid injections, they explained to me exactly what fibromyalgia is, and now I can deal with it a bit better. But when you think back, all the times you go to the doctors, you need to push, you need to push to get diagnosed. A lot of people are going undiagnosed because they give up.
Video 2 Transcript
This is kind of an ongoing thing. Even after my diagnosis with fibromyalgia, I think back, I overthink everything. And so I find myself thinking back to previous encounters with doctors and thinking, Oh, this might've been fibromyalgia before I was actually officially diagnosed with it. Um, I remember I was tested for carpal tunnel syndrome, um, with something that might actually have been a fibromyalgia flare up. And so this is an ongoing journey and there will be things that, um, you kind of realize after the fact that, Oh, wow, if I had been diagnosed earlier, I might've been able to handle this better or maybe I could have gotten treatment faster. And I want to caution not to get caught up in that because that can be, it can be really hard. Um, especially if you feel like doctors don't believe you and that that is something that, that I'm still waiting for an end for, but I'm hopeful.
Video 3 Transcript
So I have actually not been misdiagnosed officially in the fibromyalgia journey, but I have been misdiagnosed before with another condition and I have been through a number of doctors that just don't believe me. It's incredibly frustrating because when I am alone, sometimes the doctors just won't listen to me. But when my partner comes with me and he is a man, they believe him more than they'll believe me and that is just so incredibly frustrating. However, ticking off those boxes of saying, oh, no, you there's nothing wrong with your heart. Oh, no, you don't have carpal tunnel. Oh, no, you don't have this. Nothing's broken. That gives me evidence and ammunition, if you will, when I go to back to my primary care doctor or the rheumatologist and I say no, we tested for this. This isn't it. I'm telling you. I think it's this. Please check for this. So definitely take that information and use it for the good.
