May 16, 2017

Type 1 Diabetes

Here’s a free collection of resources about Type 1 Diabetes- Type 1 Diabetes blogs, videos, support groups, first-hand experiences and advice from people who have Type 1 Diabetes, etc.

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*View Resources On Type 2 Diabetes.


Type 1 Diabetes Blogs

Here’s a list of Type 1 Diabetes blogs- blogs written by people with Type 1 Diabetes, or about Type 1 Diabetes.

****Email to submit your blog to this list.***

Diabetes Sisters 2017
Global Diabetes Community 2017
Type 1 Writes 2017
Type One Nation 2017
Dream Big Travel Far 2017
T1D Living 2017
T1 International 2017
Type1Bri 2017
Miss Jen Grieves 2017
Rock Type 1 2017
Type 1 To Go 2017
Mindy Diabetes 2017


Type 1 Diabetes Support Groups

Type 1 Diabetes Support Groups On Facebook

  1. Type 1 Diabetes Support Group (11,289 members)
  2. International Friends With Type 1 Diabetes Group (8,127 members)
  3. I Hate Diabetes (Type 1) Group (5,783 members)
  4. Type 1 Diabetes and Pregnancy Group (4,750 members)
  5. Type 1 Diabetes (Pay It Forward With Kindness) Group (2,634 members)
  6. Living With Type 1 Diabetes Group (2,578 members)
  7. Type 1 Diabetes New Zealand Group (2,043 members)
  8. Type 1 Diabetes Sweeties Group (1,966 members)
  9. Type 1 Diabetes In Scotland Group (1,287 members)
  10. GA Type 1 Diabetes Support Group (1,087 members)
  11. Type 1 Diabetes Group (867 members)

Other Type 1 Diabetes Support Groups And Forums

  1. Daily Strength Diabetes Type 1 Support Group (186 members, 1,014 posts)


Type 1 Diabetes Survey

We’re surveying people about their experiences with Type 1 Diabetes. Here will be a collection of their responses.

*This information is not meant to replace medical advice, and the information gathered via surveys may or may not be correct. Hopefully it will be helpful to you!

*Response format = Answer (Name, Age)

**Click here to share your experience with Type 1 Diabetes**

Type 1 Diabetes Symptoms

What symptoms have you experienced?

  • Excessive going to bathroom, and being thirsty. (Mahdi, 17 years old)
  • High fever, vomiting, being thirsty. (Klark A., 18 years old)
  • When I was diagnosed, I lost a lot of weight, became really thirsty and had to go to the bathroom frequently. (Maria, 20 years old)
  • Frequent urination, loss of weight, thirsty all the time. (Nancy, 20 years old)
  • Extreme weight loss before diagnosis, occasional extreme thirst when BG is high, some discoloration on lower legs – doctor says it’s from t1d. (Sydney, 26 years old)
  • Drinking too much water, many times to toilet, dizziness. (Polis, 28 years old)
  • Fatigue, dizziness, dry mouth, frequent urination, feeling light headed, heart palpitations. (Lia, 30 years old)
  • High amount of urine and dry throat. (Mohsin I., 31 years old)
  • Thirst, DKA, low blood sugar, high blood sugar. (Louis, 34 years )
  • Hypo and hyperglycemia. (Anonymous, 36 years old)
  • Low and high sugar….DKA 42 times..extreme pain…gastroparesis…depressionanxiety…sadness…PTSD. (Lane, 42 years old)
  • Highs make me dry, tired and cranky, and go to the bathroom a lot. Lows make me feel like the world is ending. I am grateful I can still feel them, though. I have no complications yet, and have had the disease for 30 years! (Sally T., 45 years old)
  • Low BSL. (Anonymous, 45 years old)
  • Gastroparesis among others. (Helene, 53 years old)

Type 1 Diabetes Facts

What are some interesting facts you’ve learned about Type 1 Diabetes?

  • It’s easy to live with it when you use a pump and stay in connection with the doctor. (Mahdi, 17 years old)
  • Descipline. (Klark A., 18 years old)
  • That ketones could be caused by not having anything to eat. (Maria, 20 years old)
  • Some think it is not genetic at all, while some think it is. (Sydney, 26 years old)
  • That is manageable. (Polis, 28 years old)
  • It can happen at any age – even if it’s not in your family. (Lia, 30 years old)
  • That it’s never controlled with tablets. (Mohsin I., 31 years old)
  • There are less people diagnosed with t1 than t2. (Louis, 34 years old)
  • No matter how well you take care of yourself in the end the disease will still win. (Anonymous, 36 years old)
  • You have the gene in your body, and it is usually triggered by a virus. (Sally T., 45 years old)
  • We are all different. (Anonymous, 45 years old)
  • You can control it! (Helene, 53 years old)

Type 1 Diabetes Pain Management

What are effective ways to manage your pain (if applicable)?

  • I don’t know pain- it’s pain you can’t get rid of. (Mahdi, 17 years old)
  • Hang with friends or do something that takes my mind off of it. (Maria, 20 years old)
  • Just keeping in check. (Polis, 28 years old)
  • Whenever I have pain, I take panadol. (Mohsin I., 31 years old)
  • Reading to find out natural remedies…I keep my mind off of the pain..I soak in Epson salts…I meditate. (Lane, 42 years old)
  • Not applicable yet. (Sally T., 45 years old)
  • No pain yet after 30 years. (Helene, 53 years old)

Type 1 Diabetes Difficulties

What are the hardest aspects of living with Type 1 Diabetes?

  • Calculating carbs and night lows. (Mahdi, 17 years old)
  • The battle with high and low BG. (Klark A., 18 years old)
  • Being the only person in my family and my group of friends that has Type 1 Diabetes. (Maria, 20 years old)
  • Constantly thinking about what you eat. (Nancy, 20 years old)
  • My massive sweet tooth. (Sydney, 26 years old)
  • That you need to keep in check. (Polis, 28 years old)
  • The daily ups and downs, and just not feeling well. (Lia, 30 years old)
  • Keeping control of my blood sugar level. (Mohsin I., 31 years old)
  • I don’t always remember to check my blood sugar. (Louis, 34 years old)
  • Life revolves around food and for diabetics food is the devil. (Anonymous, 36 years old)
  • The pain. (Lane, 42 years old)
  • The lows are the hardest. Pricking my finger never gets better. (Sally T., 45 years old)
  • Management. (Anonymous, 45 years old)
  • Lows and highs. (Helene, 53 years old)

Type 1 Diabetes Advice

What words of encouragement/advice can you share with others who have Type 1 Diabetes?

  • Man, some people have cancer, and they know they will die in months. (Mahdi, 17 years old)
  • Be responsible, and love your self. (Klark A., 18 years old)
  • Take it slow and hang in there as it does get easier with time. (Maria, 20 years old)
  • Count carbs, make time for regular exercise, and take care of yourself! Be loud and proud about your diabetes. It’s your reality, and it deserves to be shared, don’t hide it away in a bathroom stall or under toe clothes. (Sydney, 26 years old)
  • You can still live with diabetes, and have an awesome life. (Polis, 28 years old)
  • Give it all you have, because if you don’t, it will take your life. (Lia, 30 years old)
  • Don’t panic, and just live your normal life, and don’t try to keep you sugar level under control, because it’s impossible to keep it always controlled- a little up/down is normal. (Mohsin I., 31 years old)
  • This disease is manageable. (Louis, 34 years old)
  • Never give up or the disease wins sooner than necessary. (Anonymous, 36 years old)
  • When you need to rest…do so. When in doubt…recheck. Water, water and more water. (Lane, 42 years old)
  • Some day, it will get easier, and we will all have great A1c. (Sally T., 45 years old)
  • Do not stress out. (Anonymous, 45 years old)

Type 1 Diabetes Diet and Exercise

What’s been your experience with diet and exercise?

  • Hard and strict. (Mahdi, 17 years old)
  • I play basketball. (Klark A., 18 years old)
  • Keeping a workout schedule has helped with my a1c. (Nancy, 20 years old)
  • Diet and regular cardio exercise has helped me manage my sugar levels in a huge way. (Sydney, 26 years old)
  • It’s very great, if I must say. (Polis, 28 years old)
  • It can work, but you have to be on top of it, especially the exercise due to the lows. (Lia, 30 years old)
  • Exercising is easier than dieting. (Louis, 34 years old)
  • Exercise makes my sugars sky rocket and dieting is hard and takes a lot more effort to lose weight. (Anonymous, 36 years old)
  • All over the map. (Lane, 42 years old)
  • I am inconsistent, even though I know better. I try to exercise daily, but it winds up being around three times a week. I eat a lot of fiber, but I ruin it with Diet Coke with a little cherry splash. I eat fairly low fat except when I snack with the Diet Coke. I do not drink enough water. (Sally T., 45 years old)
  • Avid cyclist, vegetarian low carb. This was my lifestyle pre-diabetes. Still on this plan, doing great! (Anonymous, 45 years old)
  • Very difficult.  (Helene, 53 years old)

Type 1 Diabetes Treatments

What’s been your experience with treatments (medication, etc.)?

  • Taking insulin four times a day. (Klark A., 18 years old)
  • I only take insulin injections, and use a CGM which has been a life changer/saver. (Sydney, 26 years old)
  • Sometimes it can be difficult, but not impossible. (Polis, 28 years old)
  • It works. (Lia, 30 years old)
  • I am becoming overweight after using insulin 30/70. (Mohsin I., 31 years old)
  • Insulin in all of it’s forms is much too expensive. (Louis, 34 years old)
  • Pumps work best for me. (Anonymous, 36 years old)
  • Doctors don’t care… (Lane, 42 years old)
  • Fast acting insulin on a pump. CGM is the best thing that I have ever used. (Sally T., 45 years old)
  • On the Omnipod for the last year with the Dexcom G5, life has been Great. (Anonymous, 45 years old)
  • No issues yet. (Helene, 53 years old)

Type 1 Diabetes Recommendations

Anything you’d recommend for someone with Type 1 Diabetes?

  • Stay positive, and control it. Be stronger than it buddy. (Mahdi, 17 years old)
  • Pay attention to what your body’s telling you as you may have a high or low blood sugar. (Maria, 20 years old)
  • Get a CGM!! (Sydney, 26 years old)
  • Just to be awesome. (Polis, 28 years old)
  • Just stay away from sweets and fats. (Mohsin I., 31 years old)
  • Get educated, and educate your family and friends. (Louis, 34 years old)
  • Get a endocrinologist to help manage the disease not a primary care doctor. (Anonymous, 36 years old)
  • Sleep. (Lane, 42 years old)
  • See a registered dietitian on a consistent basis. (Sally T., 45 years old)
  • Manage stress, check BSL’s, exercise. All of this with a low carb diet. (Anonymous, 45 years old)
  • Stay positive. (Helene, 53 years old)

Type 1 Diabetes Resources

What specific resources have you found most helpful?

  • Apps that remind me of basel. (Mahdi, 17 years old)
  • By joining some groups for T1D. (Klark A., 18 years old)
  • Endocrinologists and educators. Support groups. (Maria, 20 years old)
  • The Beyond Type 1 online community has been great. (Sydney, 26 years old)
  • Friends and family. (Polis, 28 years old)
  • Facebook groups, and talking with other diabetics directly. (Lia, 30 years old)
  • Mostly Google. (Mohsin I., 31 years old)
  • Google scholar has very informative up to date articles. (Anonymous, 36 years old)
  • The internet, particularly support groups on Facebook. (Louis, 34 years old)
  • Other diabetics. (Lane, 42 years old)
  • (Sally T., 45 years old)
  • My diabetes education specialist, Kat! She is the best! (Anonymous, 45 years old)
  • Facebook and personal experiences. (Helene, 53 years old)

Type 1 Diabetes Stories

Share an experience you’ve had related to living with Type 1 Diabetes.

  • Dealing with high blood sugars after an awful breakup. (Maria, 20 years old)
  • Several nearly life-threatening blood sugar situations, I might not be alive now if I’d been living alone at the time. (Sydney, 26 years old)
  • I had a low of 28, and I lived to tell it. (Lia, 30 years old)
  • It’s difficult to carry diabetic accessories with you during travel. (Mohsin I., 31 years old)
  • I had my pocketbook dumped out on the floor by security at a concert…because someone told then I was doing drugs in the bathroom…they were right and wrong…not street drugs…insulin. I still get nightmares from the incident. (Lane, 42 years old)
  • I became a dietitian as a result of living with type 1. I also became a Christian from it. (Sally T., 45 years old)
  • Low BSL’em. (Anonymous, 45 years old)
  • Public speaking. Being able to share my story with others who have diabetes. (Helene, 53 years old)