Lupus

So my husband has lupus and I think one of the hardest things about lupus is that it's an invisible disease. So he might feel great one day and another day he is bedridden and I think it's really important to remember that if you have a loved one that has lupus or a friend, make sure that you have patience and understanding for them that it could look different every day of the week. And whenever they need their rest, they need their rest or whenever they, you know, feel like going and doing things, encourage them to spend the time doing the things that they love while they feel like doing it. But I do think that that's one of the hardest aspects is that it is invisible and people think that you're faking it when you don't feel well, when in reality, you're just having a bad day. Lupus can go in and out of remission at any time. So I do think that is very challenging, especially when you feel judged by other people for how you feel.

One of the hardest aspects of being diagnosed with lupus and dealing with lupus in my life has been just the fact that I am not physically able to do everything that I want to and that I would enjoy to do. Growing up I was very active. I loved to dance. I loved to go outside. I loved to do everything. I was very social and the hardest part for me was adjusting to not always being able to do that and realizing that I do need to rest and that I do need to sometimes take a break and that I can't always say yes even if it sounds fun, but really taking into account the way that I'm feeling that day and the things that I have going on so that I can pick and choose the battles that are most important when it comes to a long day and a hard health day as well.