April 6, 2017

Lung Cancer


Here’s a free collection of resources about lung cancer- Lung cancer blogs, videos, support groups, first-hand experiences and advice from people who have lung cancer, etc.

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Lung Cancer Blogs

Here’s a list of lung cancer blogs- blogs written by people with lung cancer, or about lung cancer.

****Email alexbalinski@gmail.com to submit your blog to this list.***

CDC Resources cdc.gov/cancer/lung 2017
Lung Cancer Alliance lungcanceralliance.org 2017
Lung Cancer Journal lungcancerjournal.info 2017
Cancer.org Resources cancer.org/cancer/lung-cancer 2017
Web MD Resources webmd.com/lung-cancer 2017
Mayo Clinic Resources mayoclinic.org/..lung-cancer 2017
Medicine Net Resources medicinenet.com/lung_cancer 2017
Medline Plus Resources medlineplus.gov/lungcancer 2017
Cancer.gov Resources cancer.gov/types/lung 2017
Wikipedia Article en.wikipedia.org/wiki/Lung_cancer 2017
Cancer Care Resources lungcancer.org 2017
IASLC Resources iaslc.org 2017
European Respiratory Society erspublications.com/content/lung-cancer 2017
HealthLine Resources healthline.com/health/lung-cancer 2017
Onc Live Resources onclive.com/specialty/lung-cancer 2017
Lung Cancer Research Foundation lungcancerresearchfoundation.org 2017

Lung Cancer Support Groups

Lung Cancer Support Groups On Facebook

  1. Lung Cancer Support Group (5,596 members)
  2. The Small Cell Lung Cancer Support Community (3,972 members)
  3. Lung Cancer Awareness Group (3,758 members)
  4. Lung Cancer Survivors and Support Group (2,684 members)
  5. Lung Tumor and Lung Cancer Survivors (905 members)
  6. Lung Cancer – Grief Support (649 members)
  7. Our United Voice of Lung Cancer (460 members)
  8. Lung Cancer Prayer Group (419 members)
  9. Lung Cancer Awareness in Australia (413 members)
  10. Small Cell Lung Cancer Support Group (357 members)
  11. Small Cell Lung Cancer Support and Information Group (246 members)
  12. Lung Cancer and Caregivers Support Group (195 members)
  13. Lung Cancer Awareness/Support Group (188 members)
  14. Lung Cancer Fighters (158 members)
  15. Lung Cancer Awareness Month Facebook Group (130 members)
  16. We Support People With Lung Cancer (100 members)
  17. Lung Cancer Awareness Facebook Group (97 members)
  18. Lung Cancer Awareness Support Group (57 members)

Other Lung Cancer Support Groups And Forums

  1. Lungevity Forum (11,594 members, 410,040 posts)
  2. Lung Cancer Survivors Network Forum
  3. Free To Breathe Lung Cancer Events

Lung Cancer Survey

We’re surveying people about their experiences with lung cancer. Here will be a collection of their responses.

*This information is not meant to replace medical advice, and the information gathered via surveys may or may not be correct. Hopefully it will be helpful to you!

*Response format = Answer (Name, Age)


**Click here to share your experience with lung cancer**


Lung Cancer Symptoms

What symptoms have you experienced?

  • SOB with exercising. (Jennifer, 40 years old)
  • I had a brain tumor removed and it also spread to my bones. (Shannon, 45 years old)
  • Pappilodema. (Darah, 52 years old)
  • Blood in my spit. (Bruce N., 55 years old)
  • Swelling of face, hands etc. (Lyn, 58 years old)
  • A cough. (Norma, 62 years old)
  • Sinus problems. (Lorraine, 64 years old)
  • Coughing, feeling light headed, fatigue, swelling of the head. (Lonnie, 65 years old)

Lung Cancer Causes

Is there anything you believe contributed to your lung cancer?

  • No. (Jennifer, 40 years old)
  • Probably smoking! (Shannon, 45 years old)
  • Smoking. (Maria, 47 years old)
  • Smoking. (Darah, 52 years old)
  • Smoking. (Bruce N., 55 years old)
  • Smoking. (Lyn, 58 years old)
  • The fact that I had nasal/sinus cancer 4 years ago and this was a cancer recurrence. (Norma, 62 years old)
  • Apparently pleural plaque. (Lorraine, 64 years old)
  • Smoking. (Lonnie, 65 years old)

Lung Cancer Facts

What are some interesting facts about lung cancer?

  • The different ways people get lung cancer! (Shannon, 45 years old)
  • It is getting easier to treat, I had no breathing problems, cough etc. (Darah, 52 years old)
  • How fast it spreads. (Bruce N., 55 years old)
  • It is the second most common cancer in men and women, and sometimes symptoms do not appear until the disease is in an advanced stage. (Norma, 62 years old)
  • I found it interesting that you can have lung cancer for many years before symptoms are noticed. (Lonnie, 65 years old)

Lung Cancer Pain Management

What’s your experience with lung cancer-related pain and pain relief?

  • I’ve had no pain. (Jennifer, 40 years old)
  • Pain from tumors on my bones! Headaches from the brain tumor! Medication for pain relief! (Shannon, 45 years old)
  • There was no pain. (Maria, 47 years old)
  • Didn’t really have any. (Darah, 52 years old)
  • Good pain management. (Bruce N., 55 years old)
  • I experienced no pain, just a persistent cough. (Norma, 62 years old)

Lung Cancer Difficulties

What are the hardest aspects of living with lung cancer?

  • The stigma of lung cancer. Everyone assumes one must be or have been a smoker. Not true! (Jennifer, 40 years old)
  • Death! (Shannon, 45 years old)
  • Chemo so far. (Maria, 47 years old)
  • The constant fear of it coming back. (Darah, 52 years old)
  • The unknown. (Bruce N., 55 years old)
  • Adjusting my lifestyle after Lobectomy and worry of it recurring. (Norma, 62 years old)
  • Your body changes so quickly as far as strength and balance. It’s difficult to keep up any pace. (Lonnie, 65 years old)

Lung Cancer Advice

What encouragement/advice can you give others who have lung cancer?

  • Don’t stop living! Keep your life as “normal” as possible. One must learn to live with cancer. (Jennifer, 40 years old)
  • I really don’t know how to respond to this question! Sorry. (Shannon, 45 years old)
  • Stay positive and keep living life. (Maria, 47 years old)
  • It is doable, go for surgery. (Darah, 52 years old)
  • Keep all your options open and stay positive. (Bruce N., 55 years old)
  • Fight it with everything you have. (Lyn, 58 years old)
  • Be your own biggest advocate; question and seek to understand what your options are; stay positive, eat well and exercise every day. (Norma, 62 years old)
  • It is curable. (Lorraine, 64 years old)
  • Build your relationship with God, re-think your goals, and rekindle your relationship with your family. Don’t leave things un-said. Doing these things has made me feel more connected and peaceful. (Lonnie, 65 years old)

Lung Cancer Diet and Exercise

What’s been your experience with diet and exercise?

  • Exercising helps me a lot. It keeps me as healthy as can be. It keeps my pulmonary function at its best and relieves stress. It also helps keep my energy up. (Jennifer, 40 years old)
  • I feel weak, diet is good! (Shannon, 45 years old)
  • I’ve been eating well. Could be better. Starting to exercise slowly. (Maria, 47 years old)
  • Exercise all the time as much as you can. (Darah, 52 years old)
  • I couldn’t eat much, but did feel good enough to exercise. (Bruce N., 55 years old)
  • I follow the ketogenic diet whenever possible, and I exercise 5 days a week at the gym. Exercise includes zumba classes, mixed fit, and strength training. I had 2 lobes removed from my right lung and part of the lower lobe too. At first, I thought I would never be able to finish a 600 calorie burning zumba class again, but I have. Now after 6 months, I am finishing the class. It is not easy, but I push myself every day! (Norma, 62 years old)
  • Pulmonary rehab is great. (Lorraine, 64 years old)
  • I am trying to increase vegetable portions with less meat. And increase fruit. I have a hard time motivating myself for exercise. But I know I feel better when I do it. (Lonnie, 65 years old)

Lung Cancer Treatments

What’s been your experience with treatments?

  • Overall, I’ve not had any terrible experiences. Dealing with side effects can be a challenge but you learn what works and do it. (Jennifer, 40 years old)
  • Great, the treatments are working great! (Shannon, 45 years old)
  • Not bad at all. It just feels like something takes over my body for a few days. No nausea, vomiting, or tiredness. (Maria, 47 years old)
  • Excellent. Gamma Knife, Lobectomy Medianoscopy, and Chemo. (Darah, 52 years old)
  • OK. (Bruce N., 55 years old)
  • I completed 3 of my 4 rounds of Adjuvant Chemotherapy. I had some tough side effects and developed DVT blood clots and treatment was stopped. Chemotherapy is extremely tough on your body, and I sincerely hope in the future other therapies become more readily available with insurance coverage. (Norma, 62 years old)
  • My experience was excellent. (Lorraine, 64 years old)
  • No problems with my treatment. (Lonnie, 65 years old)

Lung Cancer Recommendations

Anything you’d recommend for someone who has lung cancer?

  • Stay positive. Positive self talk goes a long way. Lean on your faith. Lean on your family. (Jennifer, 40 years old)
  • The Keydruda treatment if they’re able to get it! It works great! (Shannon, 45 years old)
  • Stay strong and positive. (Maria, 47 years old)
  • Push for surgery. (Darah, 52 years old)
  • Cancer Centers of America. (Bruce N., 55 years old)
  • Keep living as full a life as possible, eat right, exercise and stay positive. (Norma, 62 years old)
  • Stay informed all the way, keep a journal of everything. (Lonnie, 65 years old)

Lung Cancer Resources

What specific resources have you found most helpful?

  • Others that have been through the same. (Jennifer, 40 years old)
  • Counselor! Family support! Support from the cancer center! (Shannon, 45 years old)
  • Cancer uk, Macmillan my hospital. (Darah, 52 years old)
  • Cancer Center of America. (Bruce N., 55 years old)
  • Literature at the cancer center, reading on the internet and books written by cancer patients. (Lonnie, 65 years old)

Lung Cancer Stories

Share an experience you’ve had related to living with lung cancer.

  • Thinking I got a death sentence. (Shannon, 45 years old)
  • I had fear of it coming back, but I walked 22 miles along Gower Coast to raise money for Macmillan. (Darah, 52 years old)
  • Set backs. (Bruce N., 55 years old)
  • Recently, on a group hike in the mountains, I did have to stay behind on the trail as I could not make it to the top. That bothered me, and I did remind myself as I was waiting for them to return how fortunate I was just to get as far as I did. (Norma, 62 years old)