August 23, 2017

Insomnia


Here’s a free collection of resources about insomnia- Insomnia blogs, videos, support groups, first-hand experiences and advice from people who have insomnia, etc.

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Insomnia Blogs

Here’s a list of insomnia blogs- blogs written by insomniacs, or are about insomnia.

****Email alexbalinski@gmail.com to submit your blog to this list.***

National Sleep Foundation sleepfoundation.org/insomnia 2017
WebMD webmd.com/sleep-disorders/..insomnia 2017
Mayo Clinic mayoclinic.org/..insomnia 2017
Insomnia Land insomnialand.com 2017
Medical News Today medicalnewstoday.com/articles/9155.php 2017
Wikipedia Article en.wikipedia.org/wiki/Insomnia 2017
eMedicineHealth emedicinehealth.com/insomnia 2017
The Sleep Doctor thesleepdoctor.com/blog 2017
MedlinePlus medlineplus.gov/insomnia 2017
SHUTi myshuti.com/news 2016
Insomnia Relief Almanac insomniaalmanac.blogspot.com 2010

Insomnia Support Groups

Insomnia Support Groups On Facebook

  1. Insomnia Support Group (11,489 members)
  2. The Insomnia Lounge (2,838 members)
  3. Sleep Disorders Support & Advice (2,605 members)
  4. Insomnia Issues & Solutions Worldwide (1,355 members)
  5. Insomnia Maniacs (1,031 members)
  6. Insomnia Club (982 members)
  7. Insomnia/Sleep Disorders (904 members)
  8. Chronic Insomnia Support Alliance (552 members)
  9. Insomniacs Group (258 members)
  10. Insomniac Facebook Group (220 members)
  11. Chronic Insomnia Group Global (217 members)
  12. Club Insomnia (190 members)
  13. I Can’t Sleep / Insomnia Cafe (102 members)
  14. Insomniacs (88 members)
  15. Insomnia Members Club (71 members)
  16. Insomniacs Support Group (71 members)
  17. Insomniacs United (58 members)
  18. Insomnia No More (40 members)

Other Insomnia Support Groups And Forums

  1. PsychForums Insomnia Forum
  2. DailyStrength Insomnia Support Group
  3. Insomnia Land Forum

Insomnia Survey

We’re surveying people about their experiences with insomnia. Here will be a collection of their responses.

*This information is not meant to replace medical advice, and the information gathered via surveys may or may not be correct. Hopefully it will be helpful to you!

*Response format = Answer (Name, Age)


**Click here to share your experience with insomnia**


Insomnia Symptoms

What symptoms have you experienced?

  • Sleeplessness, pain, confusion, vertigo, anxiety. (Sarah, 22 years old)
  • Inability to sleep from 2-5am, waking up early in the morning if I do sleep around 5-7am, tossing and turning, bad dreams. (Nya, 25 years old)
  • Relapsing insomnia and oversleeping, chronic fatigue, brain fog, sleep pattern disruption. (Marie, 29 years old)
  • Maintenance insomnia. (Shimon, 29 years old)
  • I can’t sleep at night, thinking. (Sophia, 36 years old)
  • Insomnia, fatigue, feeling distracted, frustrated. (Mel, 38 years old)
  • Unable to fall asleep most of the time. Sleep depravation and 4-5 hours sleep a night most nights over the course of 34 years. (Jeanne, 39 years old)
  • Not being able to sleep, or stay asleep. (Joanne, 39 years old)
  • Chronic fatigue syndrome, fibromyalgia, restless leg syndrome so too many symptoms ones that keep me awake are night. Itchy skin, night sweats, restless leg syndrome get in legs and arms, air hunger at times … according to my Fitbit I don’t go into deep sleep very often when I finally go to sleep it’s all R.E.M and light. (Becca, 40 years old).
  • Waking up at 2.30 and can’t get back to sleep (Sandee, 45 years old)
  • Difficulty falling asleep. (Dan, 46 years old)
  • Restless, no sleep for days at a time, sometimes I go a whole week without sleep. Nervous. (Denise, 49 years old)
  • Wake every hour & half don’t sleep much longer than that fatigue constant struggle. (Alan, 52 years old)
    Light unrefreshing sleep. (Seema, 52 years old)
  • My body likes to sleep between 3 am to 10 am. This is not conducive to a normal life. (Tammy, 53 years old)
  • Frequent awakenings, mild apnoea, reflux, irritability unable to return to sleep. (Gillian, 55 years old)

Insomnia Causes

Is there anything you believe contributed to your insomnia?

  • I’ve had it since I was a young child so I’m not sure. (Sarah, 22 years old)
  • Not that I know of, it has been like this since I was a child. (Nya, 25 years old)
  • Definitely CFS and fibromyalgia. (Marie, 29 years old)
  • PTSD. (Shimon, 29 years old)
  • Family issues. (Sophia, 36 years old)
  • Depression, anxiety. (Mel, 38 years old)
  • Stress. (Joanne, 39 years old)
  • Restless leg now and I’ve never slept deeply or refreshed ever since I was a teenager. I remember tossing and turning every night wake numerous times in the night and always feeling so so tired in the morning since I was around 13. There were times I was getting 8 hrs, never deep sleep though, always disturbed and light but now I find it hard to either get off to sleep or stay asleep and on the other hand I am also always feeling lethargic and tired and can fall asleep during the day given the chance. (Becca, 40 years old)
  • Stress (Sandee, 45 years old)
  • Too much studying, then no regular hours to go to bed, and wake up. (Dan, 46 years old)
  • Yes. (Denise, 49 years old)
  • Fibromyalgia (Alan, 52 years old)
  • Intelligence. High sensitivity. Childhood domestic environment not good. Competitive studies. (Seema, 52 years old)
  • I’ve had insomnia since I was five years old. My father had cancer and would often times go to the hospital in the middle of the night, since I was a child I would get taken to a relative’s house, the next morning I would wake up not knowing where I was. It was very upsetting. (Tammy, 53 years old)
  • Medications and kidney disease. (Gillian, 55 years old)

Insomnia Facts

What are some interesting facts about insomnia?

  • There are different types of insomnia. (Nya, 25 years old)
  • Insomnia can be due to many things, but sometimes it can be due to a hormone imbalance or deficiency, so everyone should check that before they start taking pills. (Shimon, 29 years old)
  • It sucks (Jeanne, 39 years old)
  • It sucks, and affects anyone, no matter the age. (Joanne, 39 years old)
  • It’s doing my head in! (Becca, 40 years old)
  • More people have it than you realize. (Sandee, 45 years old)
  • Tried fatigue all time but can’t sleep. (Alan, 52 years old)
  • When I married my current husband, my insomnia left for several years. (Tammy, 53 years old)
  • No matter what you do it changes nothing. It impacts on daily living. (Gillian, 55 years old)

Insomnia Pain

What’s your experience with emotional and physical pain?

  • Oh I have tons. I’m diagnosed with fibromyalgia as well as borderline personality disorder and severe anxiety along with the insomnia. (Sarah, 22 years old)
  • I get stressed and frustrated when I can’t sleep or sleep regularly. (Nya, 25 years old)
  • I am in a constant low level of pain, and suffer from depression. (Marie, 29 years old)
  • It’s a bit more physical than emotional. (Shimon, 29 years old)
  • Have had pain since I was a child (Jeanne, 29 years old)
  • Have had lots of emotional pain, a bit physical as well. (Joanne, 39 years old)
  • It hurts and I have it. (Becca, 40 years old)
  • I had some emotional pain, but insomnia was there much before. (Dan, 46 years old)
  • Isolating myself from friends and family, depression, severely high anxiety. (Denise, 49 years old)
  • Depression. You worry you can’t sleep, clock watch makes you worse, have headache 24/7, general pain all over. (Alan, 52 years old)
  • I had an ulcer at 7 years old, was diagnosed with depression at 16 years old, I’ve also been diagnosed with two herniated discs, asthma, hypertension, diabetes, anxiety, sciatica, IBS-C and fibromyalgia. (Tammy, 53 years old)
  • I have had both and believe I deal with it well. (Gillian, 55 years old)

Insomnia Difficulties

What are the hardest aspects of living with insomnia?

  • Working, having a social life. (Sarah, 22 years old)
  • Being up alone all night. (Nya, 25 years old)
  • Not being able to think straight sometimes, and having low levels of energy. (Marie, 29 years old)
  • I wake up too early in the morning and can hardly sleep for six hours. (Shimon, 29 years old)
  • Tired and can’t sleep (Jeanne, 39 years old)
  • Controlling the crankiness. (Joanne, 39 years old)
  • Knowing it’s making me physically and mentally ill and knowing if I don’t sleep my condition gets worse and I can’t do things with my son or absorb the things I need too. (Becca, 40 years old)
  • Exhaustion, not thinking clearly (Sandee, 45 years old)
  • Working the next day after no sleep, lack of concentration, power, transpiration and even pain. (Dan, 46 years old)
  • People do not understand the depth of being tired. (Denise, 49 years old)
  • Trying to work full time when I’m tired all the time. (Alan, 52 years old)
  • Being tired all the time, being irritable for no reason. (Tammy, 53 years old)
  • Fatigue.(Gillian, 55 years old)

Insomnia Advice

What encouragement/advice can you give other insomniacs?

  • We are all here for each other. (Sarah, 22 years old)
  • I don’t know. (Nya, 25 years old)
  • Sleep whenever you can, if you are able to. An hour nap in the middle of the day is better than no sleep. (Marie, 29 years old)
  • Live with it, and learn how to manage it. Don’t let it consume you and become a source for stress and depression. (Shimon, 29 years old)
  • Just keep swimming (Jeanne, 39 years old)
  • Try and relax and not stress about not sleeping (Sandee 45 years old)
  • Try to have regulate program as much as possible. (Dan, 46 years old)
  • Find a relaxer- like music or books. (Denise, 49 years old)
  • Just bought coloring in book try keep mind occupied. Tried to read, I’m not much of a reader. (Alan, 52 years old)
  • Be less intellectual and more physical. (Seema, 52 years old)
  • Keep looking for solutions. (Gillian, 55 years old)

Insomnia Diet and Exercise

What’s been your experience with diet and exercise?

  • It doesn’t help me much. (Sarah, 22 years old)
  • I don’t have a good appetite, working out helps me be tired. (Nya, 25 years old)
  • I haven’t found either help long term. (Marie, 29 years old)
  • I am average and not an alcoholic. (Shimon, 29 years old)
  • Currently 6 months into weight loss. Excerise 5-7 days a week 8k+ steps a day. No effect on sleep. (Jeanne, 39 years old)
  • Very little. (Joanne, 39 years old)
  • I walk everywhere but can’t exercise due to my chronic fatigue syndrome as it can make me bed-bound if I overdo it to that extent my diet isn’t good due to the lethargy and exhaustion although I do try to buy organic fruit and veg. (Becca, 40 years old)
  • Doesn’t help a lot unless your lifestyle is really bad (Sandee, 45 years old)
  • Exercise in the evening makes insomnia worse. (Dan, 46 years old)
  • Both diet and exercise have been okay in moderation. (Denise, 49 years old)
  • I go to exercise class every Sunday, bootcamp, out door diet, tend to eat chocolate in middle of the night when can’t sleep. (Alan, 52 years old)
  • Exercise is wonderful. There are foods good for sleep. (Seema, 52 years old)
  • I eat a healthy diet and exercise daily. (Gillian, 55 years old)

Insomnia Treatments

What’s been your experience with treatments (medication, etc.)?

  • Ambien is the only thing that works for me. (Sarah, 22 years old)
  • None. (Nya, 25 years old)
  • Amitriptyline helps me with my pain and insomnia to a point. I can’t feel sleepy without it. (Marie, 29 years old)
  • I took quitapine and valdoxan for two months, and then quit cold turkey and now my sleep is let’s say, just ok. (Shimon, 29 years old)
  • Ambien is why I don’t blow my brains out (Jeanne, 39 years old)
  • Medication. (Joanne, 39 years old)
  • Don’t work and add to symptoms, tramadol can sometimes keep the restless leg at bay but then can make my skin itch and breathing funny. (Becca, 40 years old)
  • Trying but little success (Sandee, 45 years old)
  • I take pills from time to time, but the next day (night) after the pill, it’s impossible to sleep. (Dan, 46 years old)
  • It doesn’t work. (Denise, 49 years old)
  • Don’t or haven’t found right treatment as off yet still trial error on 3 different meds at moment. (Alan, 52 years old)
  • A homeopath gave medications 2 years but in vain. (Seema, 52 years old)
  • I was put on sleeping pills at age 8, and to this day I will not take a sleeping pill. (Tammy, 53 years old)
  • Reluctant to take any medications. Have used clonazepam and a dopamine antagonist for restless legs. (Gillian, 55 years old)

Insomnia Recommendations

Anything you’d recommend for someone who has a hard time falling asleep?

  • Talk to your doctor!! (Sarah, 22 years old)
  • Deep breathing. (Nya, 25 years old)
  • Don’t stay in bed tossing and turning, get up and do something. (Marie, 29 years old)
  • Learn to live with it, and manage it. (Shimon, 29 years old)
  • Melatonin. (Sophia, 36 years old)
  • Try otc and behavior therapy first. Herbs, light deprivation and therapy. Don’t just jump to meds. (Jeanne, 39 years old)
  • Don’t do work and have lots of clutter or electronics in your bedroom. (Becca, 40 years old)
  • Deep breathing exercises sometimes work (Sandee, 45 years old)
  • Try to have regulate sleeping program. (Dan, 46 years old)
  • Music, dark room. (Denise, 49 years old)
  • I find the group on face book very helpful there is always some one to chat or ask advice. (Alan, 52 years old)
    I try exercise. No screens after 5pm then long slow walk then 2 bananas. Still my sleep less than ideal. (Seema, 52 years old)
  • Don’t fight your body trying to go to sleep. (Tammy, 53 years old)
  • Milk. (Gillian, 55 years old)

Insomnia Resources

What specific resources have you found most helpful?

  • My doctor, other people’s experience. (Sarah, 22 years old)
  • Google, YouTube rain sound videos. (Nya, 25 years old)
  • YouTuber bignoknow. (Shimon, 29 years old)
  • Research (Jeanne, 39 years old)
  • Massage and tramadol (Becca, 40 years old)
  • Youtube breathing exercises (Sandee, 45 years old)
  • Go to bed before 1AM. (Dan, 46 years old)
  • For myself, music. (Denise, 49 years old)
  • Facebook been my savior. (Alan, 52 years old)
  • Knowing you are not alone. (Gillian, 55 years old)

Insomnia Stories

Share your insomnia story.

  • Just trouble waking up so early before the alarm, I almost killed myself three times, took escitalopram to manage depression and my sleep. Remained the same, but I’m no longer frustrated about it. (Shimon, 29 years old)
  • I’m pretty new to this only suffer real bad 4/5 months. All started from fibromyalgia. (Alan, 52 years old)
  • Twenty-five years of kidney disease, 25 years of insomnia. (Gillian, 55 years old)