March 24, 2017

Asthma


Here’s a free collection of resources about Asthma- Asthma blogs, support groups, first-hand experiences and advice from people who have asthma, etc.

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Asthma Blogs

Here’s a list of Asthma blogs- blogs written by people with asthma, or about asthma.

****Email alexbalinski@gmail.com to submit your blog to this list.***

My Life as an Asthma Mom asthmamomlife.blogspot.com 2017
Breathinstephen breathinstephen.com 2017
Allergies and Asthma Network allergyasthmanetwork.org 2017
Hardluck Asthma hardluckasthma.blogspot.com 2017
Asthma Allergies Children asthmaallergieschildren.com 2017
Asthma and Allergy Foundation of America community.aafa.org 2017
Family Allergy and Asthma familyallergy.com 2017
asth.ma asth.ma 2017
The Asthma Center asthmacenter.com 2017
Asthma Cure by Mom asthmacurebymom.blogspot.com 2017
The Antics of a Brittle Asthmatic theanticsofabrittleasthmatic.blogspot.com 2016

Asthma Support Groups

Asthma Support Groups On Facebook

  1. Asthma Group (9754 members)
  2. Asthma, Allergies and Prednisone Group (8045 members)
  3. Asthma in Children Support Group (4921 members)
  4. Kids with Allergies, Eczema and Asthma (3908 members)
  5. Brittle Asthma Support Group (2086 members)
  6. Mommies of Kids with Asthma (1959 members)
  7. Asthma Awareness Group (1398 members)
  8. Children Living with Eczema, Utricaria, Asthma and Allergies (1279 members)
  9. Gateway Food Allergy, Eczema and Asthma Support (1216 members)
  10. Parents of Children with Asthma (843 members)
  11. Asthma – Living to Breathe Easy (793 members)
  12. Asthma Philippines (757 members)
  13. Hope for Asthma (546 members)
  14. Asthma Friends Australia (545 members)

Other Asthma Support Groups And Forums

  1. Daily Strength Asthma Support Group (499 members, 2,093 posts)

Asthma Survey

We’re surveying people about their experiences with asthma. Here will be a collection of their responses.

*This information is not meant to replace medical advice, and the information gathered via surveys may or may not be correct. Hopefully it will be helpful to you!

*Response format = Answer (Name, Age)


**Click here to share your experience with asthma**


Asthma Symptoms

What symptoms have you experienced?

  • Shortness of breath, o2 dependency, cyanosis, coughing. (Brennan, 2 years old)
  • Coughing, wheezing, struggling to breathe. (Archie S., 10 years old)
  • Wheezing, tightening in chest, shortness of breath. (Sam, 32 years old)
  • What have I not? I have severe brittle asthma, so I have had all symptoms at some point. Wheezing, shortness of breath, fatigue, dizziness, loss of consciousness, cough, sticky chest- you name it, I’ve had it.. (Sandra, 40 years old)
  • Low SATs, SOB, coughing, wheezing, congestion. (Janet H., 45 years old)
  • Wheezing, shortness of breath. (Marla, 47 years old)
  • All asthma symptoms (severe). (Jera C., 49 years old)
  • Wheezy tight chest, short breath. (Meia A., 51 years old)
  • Coughing, extreme shortness of breath. (Jenny, 53 years old)
  • Uncontrollable coughing and unable to get air, phlegm production. (Jylonda A., 58 years old)
  • Complete respiratory lock up…wheezing. (Jim B., 64 years old)

Asthma Interesting Facts

What interesting facts have you learned about asthma?

  • You can get it any age. (Archie S., 10 years old)
  • Some people grow out of it. (Sam, 32 years old)
  • How serious and life-threatening it is. (Sandra, 40 years old)
  • That you can also have COPD along with it, even if you’ve never smoked. (Marla, 47 years old)
  • Adult onset. (Jera C., 49 years old)
  • Diet, lifestyle, avoid second hand smoke, pollution, managing meds smartly. (Meia A., 51 years old)
  • Can be triggered by perfumes, odors and gastric reflux. (Jylonda A., 58 years old)
  • It can be brought on by stress and anxiety, as well as certain environmental allergens, also, certain food preservatives can trigger it (sulfites especially). (Jim B., 64 years old)

Asthma Relief

What are effective ways to relieve your asthma?

  • Pulmicort. (Brennan, 2 years old)
  • My inhalers and montlekurst. (Archie S., 10 years old)
  • Relaxing, getting fresh air. (Sam, 32 years old)
  • For me if my regular meds and nebulisers don’t work, IV medication helps such as hydrocortisone, magnesium and aminophylline. (Sandra, 40 years old)
  • Medications. (Janet H., 45 years old)
  • Rescue inhaler. Breathing in through my nose and out through my mouth, while someone is rubbing my back. (Marla, 47 years old)
  • None. (Jera C., 49 years old)
  • Keep bedroom aired. Everyday diet, avoid your allergies using a scarf over mouth cold to warm, warm to cold. (Meia A., 51 years old)
  • Prednisone and albuterol nebs. (Jenny, 53 years old)
  • Emergency inhaler, rest, breathing treatment. (Jylonda A., 58 years old)
  • Coca-Cola, Albuterol nebulizing, rescue inhalers, proventil, etc. Qvar..trying to remain calm. (Jim B., 64 years old)

Asthma Difficulties

What are the most difficult aspects of living with asthma?

  • Constant breathing issues. (Brennan, 2 years old)
  • Scared to go too far away from my mom in case I have an attack. (Archie S., 10 years old)
  • My asthma is linked to my allergies. If people have cats I can’t go to their houses. It’s restricting. (Sam, 32 years old)
  • The physical limitations, and also the fatigue from putting so much work into breathing. (Sandra, 40 years old)
  • Being on oxygen and low energy. (Janet H., 45 years old)
  • Waking up in the ICU. (Marla, 47 years old)
  • Reduction in activities. (Jera C., 49 years old)
  • Becoming breathless suddenly. (Meia A., 51 years old)
  • The severe asthma I have has cost me 100 days off work in 12 months. Lots of folks don’t understand that asthma can be that bad. (Jenny, 53 years old)
  • Perfumes or chemicals in confined spaces (airplanes, elevators, restaurants). (Jylonda A., 58 years old)
  • Shortness of breath…when you’re trying to walk or just exist, low oxygen is not pleasant. (Jim B., 64 years old)

Asthma Advice

What words of encouragement/advice can you share with others who have asthma?

  • Doctors and nurses are there to help. (Archie S., 10 years old)
  • This is just an ailment, it’s not who you are. (Janet H., 45 years old)
  • Try not to panic. Call for help as soon as you feel it oncoming. (Marla, 47 years old)
  • Don’t give up. (Jera C., 49 years old)
  • Manage you meds smartly. Avoid allergens, pets included. Phys everyday, diet healthy avoid allergens. Again it will get better over time as research is coming along in leap and bounds. Keep relaxed, swim, yoga, cycling. (Meia A., 51 years old)
  • Keep looking for good doctors who listen to you, keep thinking positive. (Jenny, 53 years old)
  • Never give up. Push back when the venue tries to move you instead of the offensive odor producing source. (Jylonda A., 58 years old)
  • In a weird way, asthma is actually an action your body takes to protect you, though it doesn’t seem that way. An asthma attack, can really be thought of as a very extreme way for the body to prevent some trigger substance or allergen from entering your system (through your respiratory system). (Jim B., 64 years old)

Asthma Diet and Exercise

What’s been your experience with diet and exercise?

  • I eat everything and do loads of sports still. (Archie S., 10 years old)
  • I can’t do exercises as I also have joint and mobility issues. If my breathing doesn’t stop me, pain does. (Sandra, 40 years old)
  • Difficulty. (Janet H., 45 years old)
  • It’s helped my asthma a lot. (Marla, 47 years old)
  • I wish I could do more exercise while I am eating a healthy diet. (Jera C., 49 years old)
  • I avoid whey protein, or your food allergens. Puts I do everyday, so should you. (Meia A., 51 years old)
  • I was able to control my huge coughing jags by changing my diet. Exercise has been minimal since I barely get back to ‘normal’, do a little walking for a few weeks, and the get a flare again. (Jenny, 53 years old)
  • Severe food allergies. (Jylonda A., 58 years old)
  • I believe I’m allergic to certain preservatives (especially sulfites). I try to avoid those. (Jim B., 64 years old)

Asthma Treatments

What’s been your experience with treatments (medication, etc.)?

  • I was in ICU for days on life support at one point, when I came round I had nebuliser and oxygen for a week. (Archie S., 10 years old)
  • I’ve been on many different types of inhalers. Symbicort is by far the best one for my asthma. (Sam, 32 years old)
  • I’m on step 5 treatment so permanent steroids, nebulisers daily, oral meds such as theophylline etc. I’m in the hospital regularly for IV meds also and have had adrenaline in an ambulance multiple times. I’ve needed airway support, and been ventilated. (Sandra, 40 years old)
  • I hate nebulizer treatment. (Janet H., 45 years old)
  • They work as well, but some don’t, which seems to have triggered my asthma even more, making it worse. (Marla, 47 years old)
  • Not good. (Jera C., 49 years old)
  • Symnicort is the best, I’m practically off salbitamol now. Amoxicillin beware of thrush. (Meia A., 51 years old)
  • Thankful for prednisone. (Jenny, 53 years old)
  • Not enough instruction for self care. (Jylonda A., 58 years old)
  • Dulera and Symbicort worked well as maintenance. (Jim B., 64 years old)

Asthma Recommendations

Anything you would recommend for someone with asthma?

  • If you finding it hard to breathe, tell someone immediately. (Archie S., 10 years old)
  • Take it seriously! (Sandra, 40 years old)
  • Follow doctor’s orders. (Janet H., 45 years old)
  • Change your eating habits. (Marla, 47 years old)
  • Find out everything you can, and go to every specialist available. (Jera C., 49 years old)
  • Exercise, exercise, diet, manage meds. (Meia A., 51 years old)
  • Read!! (Jylonda A., 58 years old)
  • Try to understand your triggers as best you can (not always easy). (Jim B., 64 years old)

Asthma Resources

What specific resources have you found most helpful?

  • Online. (Archie S., 10 years old)
  • Stay out of the smoldering heat. (Marla, 47 years old)
  • Still looking, I read everything I can. (Jera C., 49 years old)
  • Keeping my bed bone dry and bedroom house aired, as house dust more loves moist warm atmosphere. (Meia A., 51 years old)
  • Foodallergy.org; cousin (DO). (Jylonda A., 58 years old)
  • Coca-cola does work for me, also…it doesn’t hurt to have anti-anxiety meds nearby (for me) but I use Dulera, Singulair and Xolair, QVar. (Jim B., 64 years old)

Asthma Stories

Share a story of when you had an asthma attack.

  • I had one that was bad two weeks ago. I got sent to a local hospital in nebuliser, they sent me to London as it was bad, and I went on looking for support, my lungs were too weak too work alone. After three days I could breathe unaided, but went to children’s HDU for a week so they could give me frequent oxygen and nebuliser. It was scary. (Archie S., 10 years old)
  • I remember sitting hunched over on my bed trying to breath. I was using my ventilin inhaler, but it wasn’t working. I called my dad to take me to the hospital. After four ventilin treatments I was feeling somewhat better. Very shaky from the medication. (Sam, 32 years old)
  • I couldn’t breathe or move. I almost got a tube put in. The hospital didn’t do anything. (Janet H., 45 years old)
  • I came home from work last August, laid down, woke up about two hours later to me asking my son to call the squad. I woke up four days later from a coma. (Marla, 47 years old)
  • Continuous attacks, hospital stays. (Jera C., 49 years old)
  • A heavily perfumed woman on the plane sat down in a seat in front of mine. The woman laughed at my almost immediate asthma attack. Airline moved me – not her, in violation of ADA – to the back of the plane by the lavatories where EVERYONE with perfume walked past. I went to the ER for breathing treatment upon landing. (Jylonda A., 58 years old)
  • May 2013 was my worst asthma attack ever, it brought me to my knees, I believe it was triggered by an allergy shot, I may not have needed, or was too strong. I was hospitalized about six days. (Jim B., 64 years old)

Moving From Idaho To California & Developing Asthma


When I was about four years old, my father was an accountant in Rexburg, Idaho and he owned a hotel called the Ilamonte Hotel. Things didn’t go very well in his business and so he decided to take his family and move, which I believe was the single greatest thing that he ever did for me in my life, because we moved from freezing cold Rexburg, Idaho, to nice, sunny Los Angeles, California. So when I was four years old we packed up all of our stuff and we headed to Los Angeles- we probably looked like the Beverly Hillbillies. My Dad and my Mom and my two sisters and I drove through the desert which was really hot.

I think that it was a combination of the heat and my age, but somehow on that trip I developed a lung problem which then developed into bronchial pneumonia and so when we arrived in California, the first day that we were there, I could not breathe, so they had to rush me to the hospital and I spent the first two weeks in California in an oxygen tent with bronchial pneumonia, and so that kind of damaged my lungs and after that I suffered with asthma for many years. I think it was better in California because of the dry climate, but I suffered from that asthma for a long period of time. So that was probably hard on my dad, because when we moved there he didn’t have a job and he didn’t have health insurance for anything like that back at that time- this was in the early 60s.

So, we were kind of an interesting family in that we were really fresh off the farm. You know Rexburg, Idaho is a very small place to be from, and so I don’t think that I in my life had ever seen a black person, until we moved to Los Angeles. And I think it was the same way with my older sisters, and so we went to school there and we were a little bit odd. And so we had to kinda make a transition from being Idaho farm people to living in the second largest city in the United States, which was very diverse. So I think because of that, at first we were a little bit depressed and a little bit afraid, because we thought we were kind of weird, so we just kind of stay in the house all the time, we didn’t really venture out to make friends the way that we should have.

Eventually we did this over time, and it took my sisters a little bit of time to get out and make friends, but eventually we ingrained in this society, and I think this was a big benefit to me in my life, because one of the things they taught us in the LA City school system was the importance of embracing diversity and the importance of being color blind when it came to race and ethnicity and to religion, and so I really grew up not really seeing people as black or white, or Chinese or Muslim or Catholic or Baptist, but just seeing them as good or bad. You meet good people, and you meet bad people throughout your life. So, I really enjoyed the opportunity I had to grow up in Los Angeles, even though it started on kind of a bad note with developing bronchial pneumonia and asthma and I found that if I stayed in good shape, that I was able to overcome that.

So I started kind of a routine when I was in high school, of exercising every day. Some days it would be really bad and I wouldn’t be able to breathe and they came out with new medications and things that made it better for me to breathe, but I always found that if I stayed in somewhat good shape and did exercising every day that it would help reduce my asthma syndrome, so I’m so thankful for my Dad and for my mom, that they moved us off the farm- no insult to the ancestors- but they moved us to a large metropolitan city which was great to grow up in.

Back in the 60s and 70s Los Angeles and Canoga Park, the town we lived in was an amazing place to live. And I had really good friends there from all different backgrounds, so a lot of my friends were Catholic, a lot of my friends were Jewish and we got along really well and so I remember in Canoga Park we would get up on Sunday to go to our church, which was the Mormon church and we’d got outside and everybody would be dressed up and headed to church- whether they we Lutheran, or baptist or Jewish- everybody went to church and so it was really a great community to live in because we all had this thing in common, and that was that we believed in God and that kind of drew us together as a community and so it was a lot of closeness in the neighborhood that we lived in, and so I loved my early years growing up in Los Angeles, especially the times that I could breathe.